Challenging misinformation and engaging patients: Characterizing a regenerative medicine consult service

Cambray Smith, Charlene Martin-Lillie, Jennifer Dens Higano, Leigh Turner, Sydney Phu, Jennifer Arthurs, Timothy J. Nelson, Shane Shapiro, Zubin Master

Research output: Contribution to journalArticlepeer-review

15 Scopus citations

Abstract

Aim: To address the unmet needs of patients interested in regenerative medicine, Mayo Clinic created a Regenerative Medicine Consult Service (RMCS). We describe the service and patient satisfaction. Materials & methods: We analyzed RMCS databases through retrospective chart analysis and performed qualitative interviews with patients. Results: The average patient was older to elderly and seeking information about regenerative options for their condition. Patients reported various conditions with osteoarthritis being most common. Over a third of consults included discussions about unproven interventions. About a third of patients received a clinical or research referral. Patients reported the RMCS as useful and the consultant as knowledgeable. Conclusion: An institutional RMCS can meet patients' informational needs and support the responsible translation of regenerative medicine.

Original languageEnglish (US)
Pages (from-to)1427-1440
Number of pages14
JournalRegenerative Medicine
Volume15
Issue number3
DOIs
StatePublished - Mar 2020

Bibliographical note

Funding Information:
Z Master would like to acknowledge research support from the Mayo Clinic CTSA Small Grant Program from UL1 TR002377, NIH/NCATS. Several of the authors are employees of Mayo Clinic. The authors have no other relevant affiliations or financial involvement with any organization or entity with a financial interest in or financial conflict with the subject matter or materials discussed in the manuscript apart from those disclosed. No writing assistance was utilized in the production of this manuscript.

Publisher Copyright:
© 2020 © 2020 Future Medicine Ltd.

Keywords

  • consultation service
  • ethical
  • evidence-based medicine
  • information for patients
  • patient education
  • patient navigation
  • regenerative medicine education
  • responsible translation
  • unproven stem cell therapies

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