Caregivers of Patients with Brain Metastases: A Description of Caregiving Responsibilities and Psychosocial Well-being

Dana Ketcher, Amy K. Otto, Maija Reblin

Research output: Contribution to journalArticlepeer-review

Abstract

BACKGROUND There are increasing numbers of cancer patients with brain metastases, and there is a high potential for caregiving burden. Little work has explored caregiving responsibilities and psychosocial well-being in informal family caregivers (FCGs) of cancer patients with brain metastases. This study aimed to address this gap in the literature. METHODS Data were drawn from baseline pilot study data. Caregivers completed demographic information and provided a self-report of their caring responsibilities and psychosocial well-being via questionnaire. RESULTS Participants were 21 FCGs of patients with brain metastases. Many caregivers are devoting extensive time to providing care; there was high variability in the number and types of caregiving activities reported. Although many caregivers report feeling well supported, other aspects of psychosocial well-being were less robust, including anxiety, depression, burden, and coping self-efficacy. CONCLUSION Although FCGs reported mitigating factors such as social support, they still experience significant distress. Findings support previous work suggesting that neuro-oncology caregiving is burdensome, with adverse effects on health and well-being. Foundational work, such as this, will set the stage to identify areas for future intervention.

Original languageEnglish (US)
Pages (from-to)112-116
Number of pages5
JournalJournal of Neuroscience Nursing
Volume52
Issue number3
DOIs
StatePublished - Jun 1 2020
Externally publishedYes

Bibliographical note

Funding Information:
This research was supported by the National Cancer Institute of the National Institutes of Health under award number R03CA201684-01 (PI: Reblin).

Publisher Copyright:
© Lippincott Williams & Wilkins.

Keywords

  • brain metastases
  • care partner
  • caregiving
  • family caregivers
  • nursing
  • well-being

PubMed: MeSH publication types

  • Journal Article

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