Care coordination for the chronically ill: Understanding the patient's perspective

Daniel D. Maeng, Grant R. Martsolf, Dennis P. Scanlon, Jon B. Christianson

Research output: Contribution to journalArticlepeer-review

72 Scopus citations


Objective To identify factors associated with perception of care coordination problems among chronically ill patients. Methods Patient-level data were obtained from a random-digit dial telephone survey of adults with chronic conditions. The survey measured respondents' self-report of care coordination problems and level of patient activation, using the Patient Activation Measure (PAM-13). Logistic regression was used to assess association between respondents' self-report of care coordination problems and a set of patient characteristics. Results Respondents in the highest activation stage had roughly 30-40 percent lower odds of reporting care coordination problems compared to those in the lowest stage (p <.01). Respondents with multiple chronic conditions were significantly more likely to report coordination problems than those with hypertension only. Respondents' race/ethnicity, employment, insurance status, income, and length of illness were not significantly associated with self-reported care coordination problems. Conclusion We conclude that patient activation and complexity of chronic illness are strongly associated with patients' self-report of care coordination problems. Developing targeted strategies to improve care coordination around these patient characteristics may be an effective way to address the issue.

Original languageEnglish (US)
Pages (from-to)1960-1979
Number of pages20
JournalHealth services research
Issue number5
StatePublished - Oct 2012


  • Chronic disease
  • patient assessment/satisfaction
  • quality of care/patient safety (measurement)


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