Bridging the Gaps in Patient Education for DBS Surgery in Parkinson's Disease

Colleen D. Knoop, Robert Kadish, Kathy Hager, Michael C. Park, Paul D. Loprinzi, Kathrin Lafaver

Research output: Contribution to journalArticlepeer-review

11 Scopus citations


Introduction. Improvements in quality of life, tremor, and other motor features have been recognized as superior in patients with advanced Parkinson's disease (PD) treated with deep brain stimulation (DBS) surgery versus best medical therapy. We studied a group of patients with PD after undergoing DBS surgery in regard to expectations and satisfaction with DBS outcomes to determine gaps in patient education. Methods. This study was a retrospective, single academic center chart review and outcome questionnaire sent to patients with PD who had undergone DBS surgery between 2007 and 2014. Results. All patients surveyed indicated that benefit from DBS surgery met their overall expectations at least partially, but only 46.4% (SE: 9.6%) were in complete agreement. 3.6% (SE: 3.6%) of participants strongly disagreed that preoperative education prepared them adequately for the procedure and 17.9% (SE: 7.4%) only somewhat agreed. Conclusions. Our findings demonstrate that patients' expectations of DBS surgery in PD were at least partially met. However, there was a considerable percentage of patients who did not feel adequately prepared for the procedure. A structured, multidisciplinary team approach in educating PD patients throughout the different stages of DBS surgery may be helpful in optimizing patients' experience and satisfaction with surgery outcomes.

Original languageEnglish (US)
Article number9360354
JournalParkinson's Disease
StatePublished - 2017

Bibliographical note

Funding Information:
Dr. Michael C. Park is a listed faculty for the University of Minnesota Educational Partnership with Medtronic, Inc., Minneapolis, MN. He received research support from Medtronic, Inc., Boston Scientific and Advanced Neuromod-ulation Systems, Inc., and St. Jude Medical. Dr. Kathrin LaFaver received research support for participation in multicenter studies from the Parkinson’s Study Group, Huntington’s Study Group, and Vaccinex, Inc. Drs. Colleen D. Knoop, Robert Kadish, Kathy Hager, and Paul D. Loprinzi declare that there are no conflicts of interest regarding the publication of this paper.

Publisher Copyright:
© 2017 Colleen D. Knoop et al.


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