Bioethics for Neonatal Cardiac Care

Vanessa N. Madrigal, Dalia M. Feltman, Steven R. Leuthner, Roxanne Kirsch, Rekha Hamilton, Deborah Dokken, Jennifer Needle, Renee Boss, Efrat Lelkes, Brian Carter, Eduardo MacIas, Shazia Bhombal

Research output: Contribution to journalArticlepeer-review

2 Scopus citations


BACKGROUND: Clinicians caring for neonates with congenital heart disease encounter challenges with ethical implications in daily practice and must have some basic fluency in ethical principles and practical applications. METHODS: Good ethical practice begins with a thorough understanding of the details and narrative of each individual case, examination via classic principles of bioethics, and further framing of that translation into practice. RESULTS: We explore some of these issues and expand awareness through the lens of a case presentation beginning with fetal considerations through end-of-life discussions. CONCLUSIONS: We include specific sections that bring attention to shared decision-making, research ethics, and outcomes reporting. We review empirical evidence and highlight recommendations.

Original languageEnglish (US)
Article numbere2022056415N
Issue numberSuppl 2
StatePublished - Nov 1 2022

Bibliographical note

Publisher Copyright:
Copyright © 2022 by the American Academy of Pediatrics.


  • Pregnancy
  • Infant, Newborn
  • Female
  • Humans
  • Bioethics
  • Narration
  • Prenatal Care

PubMed: MeSH publication types

  • Review
  • Journal Article


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