Autism-specific primary care medical home intervention

Allison Golnik, Peter B Scal, Andrew Wey, Philippe Gaillard

Research output: Contribution to journalArticlepeer-review

48 Scopus citations


Forty-six subjects received primary medical care within an autism-specific medical home intervention ( and 157 controls received standard primary medical care. Subjects and controls had autism spectrum disorder diagnoses. Thirty-four subjects (74%) and 62 controls (40%) completed pre and post surveys. Controlling for pre-survey medical home status, subjects had 250% greater odds of receipt of a medical home at the study end compared to controls (p = 0.021). Compared to controls, subjects receiving the intervention reported significantly more satisfaction (p = 0.0004), greater shared decision making (p = 0.0005) and fewer unmet needs (p = 0.067). However, subjects reported no change in family stress (p = 0.204).

Original languageEnglish (US)
Pages (from-to)1087-1093
Number of pages7
JournalJournal of Autism and Developmental Disorders
Issue number6
StatePublished - Jun 2012

Bibliographical note

Funding Information:
The ASD-specific medical home intervention was created and implemented November 1, 2008–October 31, 2010 and funded through a medical home demonstration grant from the Minnesota Department of Human Services. The medical home was created as part of a private general primary care clinic which is associated with, but geographically separate from, the University of Minnesota. Subjects received their well and acute care from this clinic experiencing 2–7 visits during the study period. The implementation team consisted of five parents of children with ASD, a general pediatrician, a nurse care coordinator and a scheduling care coordinator. Monthly meetings and quarterly state-wide collaborative meetings facilitated continuous quality improvement through plan, do, study, act (PDSA) cycles. Major ASD-specific accomplishments included: ASD care plan (organized document of each child’s care), change monitoring log (tool for collecting treatment trial data; recognizes that each child with ASD is an individual and no one treatment works for all), coordination with outside resources (creation of ASD-specific resource list and ASD dentist list), tools to improve appointments (clinic pictures and stories written in ‘‘ASD social story’’ format, ASD-specific toys and longer duration visits). Detailed information and downloadable tools can be found at


  • Autism
  • Care coordination
  • Medical home
  • Primary care


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