AO Spine Adult Spinal Deformity Patient Profile: A Paradigm Shift in Comprehensive Patient Evaluation in Order to Optimize Treatment and Improve Patient Care

J. Naresh-Babu, Kenny Yat Hong Kwan, Yabin Wu, Caglar Yilgor, Ahmet Alanay, Kenneth M.C. Cheung, David W. Polly, Jong Beom Park, Manabu Ito, Lawrence G. Lenke, Miranda L. van Hooff, Marinus de Kleuver

Research output: Contribution to journalArticlepeer-review

4 Scopus citations

Abstract

Study Design: Modified Delphi study. Objective: Adult spinal deformity (ASD) is an increasingly recognized condition, comprising a spectrum of pathologies considerably impacting patients’ health and functional status. Patients present with a combination of pain, disability, comorbidities and radiological deformity. The study aims to propose a systematic approach of gathering information on the factors that drive decision-making by developing a patient profile. Methods: The present study comprises of 3 parts. Part 1: Development of prototype of patient profile: The data from the Core Outcome Study on SCOlisis (COSSCO) by Scoliosis Research Society (SRS) was categorized into a conceptual framework. Part 2: Modified Delphi study: Items reaching >70% agreement were included in a 4 round iterative process with 51 panellists across the globe. Part 3: Pilot testing—feasibility: Content validity and usability were evaluated quantitatively. Results: The profile consisted of 4 domains. 1. General health with demographics and comorbidities, 2.Spine-specific health with spine related health and neurological status, 3. Imaging with radiographic and MRI parameters and 4. Deformity type. Each domain consisted of 1 or 2 components with various factors and their measuring instruments. Profile was found to have an excellent content validity (I-CVIr 0.78-1.00; Ave-CVI 0.92) appropriateness, relevance and usefulness. Conclusions: The present study, is first to provide a universally applicable multimodal ASD patient profile to methodically describe patients. Physicians are encouraged to assess ASD patients holistically using this profile and not just based on radiographic findings.

Original languageEnglish (US)
Pages (from-to)1490-1501
Number of pages12
JournalGlobal Spine Journal
Volume13
Issue number6
Early online dateAug 17 2021
DOIs
StatePublished - Jul 2023

Bibliographical note

Funding Information:
The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: This study was organized and funded by AO Spine through the AO Spine Knowledge Forum Deformity, a focused group of international deformity experts. AO Spine is a clinical division of the AO Foundation, which is an independent medically-guided not-for-profit organization. Study support was provided directly through the AO Spine Research Department.

Funding Information:
The study was proposed by AO Spine Indian Subcontinent (AOSIN) on behalf of AO Spine Asia Pacific (AOSAP) in response to the AO Spine Global Research Grant call for proposals. This study was organized and funded by AO Spine through the AO Spine Knowledge Forum Deformity, a focused group of international deformity experts. AO Spine is a clinical division of the AO Foundation, which is an independent medically-guided not-for-profit organization. Study support was provided directly through the AO Spine Research Department. The consensus based on Delphi process was reached thanks to the contributions of expert surgeons and radiologist, as panelists, across the globe. The list of panelists is provided in the Appendix. The experts were identified through the recommendations provided by AO Spine Asia Pacific, AO Spine Europe and Southern Africa, AO Spine Latin American, AO Spine Middle East and Northern Africa, and AO Spine North America.

Publisher Copyright:
© The Author(s) 2021.

Keywords

  • Delphi process
  • adult spinal deformity
  • classification
  • content validity
  • patient profile
  • usability

PubMed: MeSH publication types

  • Journal Article

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