Acceptability and Feasibility of Collecting Sexual Orientation and Expanded Gender Identity Data in Urology and Oncology Clinics

B. R.Simon Rosser, Elizabeth J. Polter, Neelam Chandiramani, Sean Cahill, Christopher W. Wheldon, Badrinath R. Konety, Charles J. Ryan, Ryan Haggart, Aditya Kapoor

Research output: Contribution to journalArticlepeer-review

1 Scopus citations

Abstract

Purpose: We evaluated the acceptability and feasibility of collecting sexual orientation and gender identity (SOGI) data in oncology and urology clinical settings. Methods: We surveyed 101 urology and 104 oncology clinic patients with a standardized sexual orientation question with six response options, "lesbian, gay, or homosexual;""straight or heterosexual;""bisexual;""something else;""do not know;"and "choose not to disclose."Next, we added the sexual orientation question and an expanded gender identity question to the electronic medical record (EMR) and analyzed data on the first 450 urology and 103 oncology patients. Acceptability and feasibility were assessed based on responses to the survey and patient intake forms. Results: In the acceptability survey, only 3% of urology and 4% of oncology patients selected "choose not to disclose."Over 90% of patients in both clinics assessed the sexual orientation question as understandable and easy to answer. In all, 79% of urology and 73% of oncology patients stated they would answer it in their EMR, but only 56% of urology and 54% of oncology patients described the information as important. Sexual minority patients were as likely as heterosexual patients to state they would answer the question. Only 5% of patients selected "choose not to disclose"for sexual orientation, and <1% for the expanded gender identity question. Conclusion: Adding SOGI questions to the EMR appears to be acceptable and feasible and the sexual orientation question was understandable to a large majority of urology and oncology patients. ClinicalTrials.gov ID: NCT03343093.

Original languageEnglish (US)
Pages (from-to)420-426
Number of pages7
JournalLGBT Health
Volume8
Issue number6
DOIs
StatePublished - Aug 5 2021

Bibliographical note

Funding Information:
This study was conducted with funding from the National Cancer Institute (Grant award: 1R01 CA218657-01S1; Principal Investigator: B.R. Simon Rosser).

Publisher Copyright:
© Copyright 2021, Mary Ann Liebert, Inc., publishers 2021.

Keywords

  • data collection
  • gender
  • oncology
  • sexual orientation
  • urology

PubMed: MeSH publication types

  • Journal Article
  • Research Support, N.I.H., Extramural

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