A Survey of Genetic Counselors' Use of Informed Consent Documents for Prenatal Genetic Counseling Sessions

Gretchen M. Jacobson, Patricia Mc Carthy Veach, Bonnie S. LeRoy

Research output: Contribution to journalReview articlepeer-review

4 Scopus citations

Abstract

Thirty six members of the Prenatal Diagnosis Special Interest Group of the National Society of Genetic Counselors were interviewed about their use of informed consent documents for the genetic counseling component of their prenatal genetic counseling sessions and their perceptions of the utility and feasibility of such documents. Major findings include (1) None of the genetic counselors currently used a consent document describing the genetic counseling component of the session itself; (2) Only three participants stated that they had ever used an informed consent document for this component of the session; (3) They disagreed about the importance and usefulness of such a document; (4) There was variability in their reported likelihood of using a document if one were available; (5) There was a fair amount of agreement about the types of information to include on an informed consent document for genetic counseling; over half of the sample endorsed 8 of 10 topics; and (6) Participants identified 10 obstacles to using such a document. Recommendations for genetic counseling practice, policy, and research are given.

Original languageEnglish (US)
Pages (from-to)3-24
Number of pages22
JournalJournal of Genetic Counseling
Volume10
Issue number1
DOIs
StatePublished - 2001

Keywords

  • Informed consent
  • Prenatal genetic counseling

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