Abstract
Aim: Precision medicine research recruitment poses challenges. To better understand factors impacting recruitment, this study assessed hypothetical willingness, public opinions of and familiarity with precision medicine research. Materials & methods: Adult attendees (n = 942) at the 2017 Minnesota State Fair completed an electronic survey. Results: Few respondents had heard of ‘precision medicine' (18%), and familiarity came mostly from media (43%). Fifty-six percent expressed hypothetical willingness to participate in precision medicine research. Significant predictors of willingness were: comfort with unconditional research; perceiving precision medicine research as beneficial, trustworthy and confidential; having a graduate degree; comfort with self- but not family-participation; and familiarity with precision/personalized medicine. Conclusion: This study identified predictors of hypothetical willingness to participate in precision medicine research. Alternative recruitment strategies are needed.
| Original language | English (US) |
|---|---|
| Pages (from-to) | 345-359 |
| Number of pages | 15 |
| Journal | Personalized Medicine |
| Volume | 17 |
| Issue number | 5 |
| DOIs | |
| State | Published - Sep 2020 |
Bibliographical note
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Keywords
- genetics studies
- genomics studies
- personalized medicine
- precision medicine
- recruitment