A roadmap for precision medicine research recruitment: Empirical assessment of the public's willingness to participate

Kelsey Moriarty, Susan M. Wolf, Patricia M Veach, Bonnie Leroy, Ian M. MacFarlane, Heather A. Zierhut

Research output: Contribution to journalArticlepeer-review

Abstract

Aim: Precision medicine research recruitment poses challenges. To better understand factors impacting recruitment, this study assessed hypothetical willingness, public opinions of and familiarity with precision medicine research. Materials & methods: Adult attendees (n = 942) at the 2017 Minnesota State Fair completed an electronic survey. Results: Few respondents had heard of ‘precision medicine' (18%), and familiarity came mostly from media (43%). Fifty-six percent expressed hypothetical willingness to participate in precision medicine research. Significant predictors of willingness were: comfort with unconditional research; perceiving precision medicine research as beneficial, trustworthy and confidential; having a graduate degree; comfort with self- but not family-participation; and familiarity with precision/personalized medicine. Conclusion: This study identified predictors of hypothetical willingness to participate in precision medicine research. Alternative recruitment strategies are needed.

Original languageEnglish (US)
Pages (from-to)345-359
Number of pages15
JournalPersonalized Medicine
Volume17
Issue number5
DOIs
StatePublished - Sep 2020

Bibliographical note

Funding Information:
This project was funded in part by the University of Minnesota’s Minnesota Precision Medicine Collaboration (MPMC). Additional funding for Susan Wolf’s contribution was provided by National Institutes of Health (NIH), National Human Genome Research Institute (NHGRI) and National Cancer Institute (NCI) grant 1R01HG008605. All views expressed in this paper are those of the authors, not the funders. The authors have no other relevant affiliations or financial involvement with any organization or entity with a financial interest in or financial conflict with the subject matter or materials discussed in the manuscript apart from those disclosed. No writing assistance was utilized in the production of this manuscript.

Publisher Copyright:
© 2020 Future Medicine Ltd.. All rights reserved.

Keywords

  • genetics studies
  • genomics studies
  • personalized medicine
  • precision medicine
  • recruitment

Fingerprint

Dive into the research topics of 'A roadmap for precision medicine research recruitment: Empirical assessment of the public's willingness to participate'. Together they form a unique fingerprint.

Cite this