A new lease on life: Preliminary needs assessment for the development of a survivorship program for young adult survivors of cancer in South Texas

Susanne Schmidt, L. Aubree Shay, Harriet V. King, Jordan Buckley, Leanne Embry, Helen M. Parsons

Research output: Contribution to journalArticle

Abstract

Priorities for young adult survivorship care from the survivors' perspective are not well documented. To address this within our patient population, we conducted a multimethod needs assessment of young adult survivors of pediatric, adolescent, and young adult cancer in South Texas to get a better understanding of the ongoing challenges and priorities for their survivorship needs and related services. Participants were 18 to 39 years at the time of the needs assessment and predominately Hispanic. In an online survey, survivors most commonly cited being concerned about their physical and mental health, long-term treatment effects, recurrence, and health insurance issues. Participants stated that they received critical support from family, friends, and medical staff, but they would like to receive additional support from other cancer survivors through peer mentorship opportunities and survivor retreats/social events.

Original languageEnglish (US)
Pages (from-to)e154-e158
JournalJournal of pediatric hematology/oncology
Volume40
Issue number3
DOIs
StatePublished - Jan 1 2018

Fingerprint

Needs Assessment
Survivors
Young Adult
Survival Rate
Neoplasms
Mentors
Medical Staff
Health Insurance
Hispanic Americans
Mental Health
Pediatrics
Recurrence
Population

Keywords

  • cancer
  • needs assessment
  • survivorship
  • young adult

PubMed: MeSH publication types

  • Journal Article
  • Research Support, N.I.H., Extramural

Cite this

A new lease on life : Preliminary needs assessment for the development of a survivorship program for young adult survivors of cancer in South Texas. / Schmidt, Susanne; Shay, L. Aubree; King, Harriet V.; Buckley, Jordan; Embry, Leanne; Parsons, Helen M.

In: Journal of pediatric hematology/oncology, Vol. 40, No. 3, 01.01.2018, p. e154-e158.

Research output: Contribution to journalArticle

@article{bf073526f3b94ffe8ff0644c715444de,
title = "A new lease on life: Preliminary needs assessment for the development of a survivorship program for young adult survivors of cancer in South Texas",
abstract = "Priorities for young adult survivorship care from the survivors' perspective are not well documented. To address this within our patient population, we conducted a multimethod needs assessment of young adult survivors of pediatric, adolescent, and young adult cancer in South Texas to get a better understanding of the ongoing challenges and priorities for their survivorship needs and related services. Participants were 18 to 39 years at the time of the needs assessment and predominately Hispanic. In an online survey, survivors most commonly cited being concerned about their physical and mental health, long-term treatment effects, recurrence, and health insurance issues. Participants stated that they received critical support from family, friends, and medical staff, but they would like to receive additional support from other cancer survivors through peer mentorship opportunities and survivor retreats/social events.",
keywords = "cancer, needs assessment, survivorship, young adult",
author = "Susanne Schmidt and Shay, {L. Aubree} and King, {Harriet V.} and Jordan Buckley and Leanne Embry and Parsons, {Helen M.}",
year = "2018",
month = "1",
day = "1",
doi = "10.1097/MPH.0000000000000990",
language = "English (US)",
volume = "40",
pages = "e154--e158",
journal = "Journal of Pediatric Hematology/Oncology",
issn = "1077-4114",
publisher = "Lippincott Williams and Wilkins",
number = "3",

}

TY - JOUR

T1 - A new lease on life

T2 - Preliminary needs assessment for the development of a survivorship program for young adult survivors of cancer in South Texas

AU - Schmidt, Susanne

AU - Shay, L. Aubree

AU - King, Harriet V.

AU - Buckley, Jordan

AU - Embry, Leanne

AU - Parsons, Helen M.

PY - 2018/1/1

Y1 - 2018/1/1

N2 - Priorities for young adult survivorship care from the survivors' perspective are not well documented. To address this within our patient population, we conducted a multimethod needs assessment of young adult survivors of pediatric, adolescent, and young adult cancer in South Texas to get a better understanding of the ongoing challenges and priorities for their survivorship needs and related services. Participants were 18 to 39 years at the time of the needs assessment and predominately Hispanic. In an online survey, survivors most commonly cited being concerned about their physical and mental health, long-term treatment effects, recurrence, and health insurance issues. Participants stated that they received critical support from family, friends, and medical staff, but they would like to receive additional support from other cancer survivors through peer mentorship opportunities and survivor retreats/social events.

AB - Priorities for young adult survivorship care from the survivors' perspective are not well documented. To address this within our patient population, we conducted a multimethod needs assessment of young adult survivors of pediatric, adolescent, and young adult cancer in South Texas to get a better understanding of the ongoing challenges and priorities for their survivorship needs and related services. Participants were 18 to 39 years at the time of the needs assessment and predominately Hispanic. In an online survey, survivors most commonly cited being concerned about their physical and mental health, long-term treatment effects, recurrence, and health insurance issues. Participants stated that they received critical support from family, friends, and medical staff, but they would like to receive additional support from other cancer survivors through peer mentorship opportunities and survivor retreats/social events.

KW - cancer

KW - needs assessment

KW - survivorship

KW - young adult

UR - http://www.scopus.com/inward/record.url?scp=85044764368&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=85044764368&partnerID=8YFLogxK

U2 - 10.1097/MPH.0000000000000990

DO - 10.1097/MPH.0000000000000990

M3 - Article

C2 - 28991132

AN - SCOPUS:85044764368

VL - 40

SP - e154-e158

JO - Journal of Pediatric Hematology/Oncology

JF - Journal of Pediatric Hematology/Oncology

SN - 1077-4114

IS - 3

ER -