A multi-center cardiac registry. A method to assess outcome of catheterization intervention or surgery

James H. Moller, Christine B. Hills, Lee A. Pyles

Research output: Contribution to journalArticlepeer-review

21 Scopus citations

Abstract

This report describes a multi-institutional study of outcomes of pediatric-aged patients undergoing cardiac catheterization and cardiac operation. The data collected and analysis systems including adjustment for case-mix are described. The data are used by individual centers to assess the nature and quality of their services as well as to contribute to the literature. Because of the large number of patients (63,181) on whom we have data, the Pediatric Cardiac Care Consortium has the ability to address important clinical problems presented by various cardiac anomalies or patient groups.

Original languageEnglish (US)
Pages (from-to)7-12
Number of pages6
JournalProgress in Pediatric cardiology
Volume20
Issue number1
DOIs
StatePublished - May 2005

Bibliographical note

Funding Information:
Between 1953 and 1976, the federal Department of Maternal and Child Health funded a Minnesota-based Regional Cardiac Program intended to provide financial support for medical care to families of children with congenital heart disease from the states surrounding Minnesota. Of the 10 original federally-funded regional cardiac programs, by the early 1970s, the Minnesota program was one of only two remaining, the other being located at Johns Hopkins Hospital. Because of the availability of both public and private funding for health care, the regional director of Maternal and Child Health (John Dyer, MD) challenged pediatric cardiologists in the Upper Midwest to reexamine the use of these federal funds. Pediatric cardiologists from the Mayo Clinic and the Universities of Iowa and Minnesota met with their state directors of Maternal and Child Health. From these discussions, a non-profit organization, Northern Great Plains Regional Cardiac Program (NGPRCP), was formed that would receive these federal funds. The initial purpose of the NGPRCP was to collect and analyze data on children with cardiac anomalies undergoing cardiac catheterization or surgery, to provide education to families with a child with congenital heart disease, and to work toward regionalization of cardiac care.

Copyright:
Copyright 2017 Elsevier B.V., All rights reserved.

Keywords

  • Cardiac surgery
  • Interventional cardiac catheterization
  • Outcome analysis

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