Abstract
Ethical issues are an inevitable part of genetic counseling practice. Prior research identified 16 domains of ethical and professional challenges encountered by practitioners in the United States. In order to further validate these domains, the present study surveyed Australian genetic counselors. Sixty-three respondents rated the frequency with which they encountered each domain, and 39 individuals also provided personal anecdotes detailing their most challenging ethical and professional dilemmas. Every domain reportedly was experienced by the Australian sample. However, there were some differences between Australian respondents and U.S. genetic counselors in frequencies of domain occurrence, and in strategies recommended for resolving them. Several anecdotes illustrate challenging situations due to Australia's geography, universal healthcare system, and the genetic counseling profession's evolution in that country. The results generally validate domains identified for U.S. genetic counselors. They further suggest that certain ethical issues may manifest in ways unique to a given country, and therefore they must be addressed in a culturally-appropriate manner.
| Original language | English (US) |
|---|---|
| Pages (from-to) | 379-394 |
| Number of pages | 16 |
| Journal | Journal of Genetic Counseling |
| Volume | 18 |
| Issue number | 4 |
| DOIs | |
| State | Published - Aug 2009 |
UN SDGs
This output contributes to the following UN Sustainable Development Goals (SDGs)
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SDG 3 Good Health and Well-being
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SDG 10 Reduced Inequalities
Keywords
- Ethical and professional dilemmas
- Ethical decision-making
- Genetic counseling in Australia and the United States
- Genetic counselor ethical strategies
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