A comparative analysis of ethical and professional challenges experienced by australian and U.S. genetic counselors

Sarah Alliman, Patricia McCarthy Veach, Dianne M. Bartels, Fengqin Lian, Carolyn James, Bonnie S. Leroy

Research output: Contribution to journalArticlepeer-review

20 Scopus citations

Abstract

Ethical issues are an inevitable part of genetic counseling practice. Prior research identified 16 domains of ethical and professional challenges encountered by practitioners in the United States. In order to further validate these domains, the present study surveyed Australian genetic counselors. Sixty-three respondents rated the frequency with which they encountered each domain, and 39 individuals also provided personal anecdotes detailing their most challenging ethical and professional dilemmas. Every domain reportedly was experienced by the Australian sample. However, there were some differences between Australian respondents and U.S. genetic counselors in frequencies of domain occurrence, and in strategies recommended for resolving them. Several anecdotes illustrate challenging situations due to Australia's geography, universal healthcare system, and the genetic counseling profession's evolution in that country. The results generally validate domains identified for U.S. genetic counselors. They further suggest that certain ethical issues may manifest in ways unique to a given country, and therefore they must be addressed in a culturally-appropriate manner.

Original languageEnglish (US)
Pages (from-to)379-394
Number of pages16
JournalJournal of Genetic Counseling
Volume18
Issue number4
DOIs
StatePublished - Aug 2009

Keywords

  • Ethical and professional dilemmas
  • Ethical decision-making
  • Genetic counseling in Australia and the United States
  • Genetic counselor ethical strategies

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