TY - JOUR
T1 - A comparative analysis of ethical and professional challenges experienced by australian and U.S. genetic counselors
AU - Alliman, Sarah
AU - McCarthy Veach, Patricia
AU - Bartels, Dianne M.
AU - Lian, Fengqin
AU - James, Carolyn
AU - Leroy, Bonnie S.
N1 - Copyright:
Copyright 2011 Elsevier B.V., All rights reserved.
PY - 2009/8
Y1 - 2009/8
N2 - Ethical issues are an inevitable part of genetic counseling practice. Prior research identified 16 domains of ethical and professional challenges encountered by practitioners in the United States. In order to further validate these domains, the present study surveyed Australian genetic counselors. Sixty-three respondents rated the frequency with which they encountered each domain, and 39 individuals also provided personal anecdotes detailing their most challenging ethical and professional dilemmas. Every domain reportedly was experienced by the Australian sample. However, there were some differences between Australian respondents and U.S. genetic counselors in frequencies of domain occurrence, and in strategies recommended for resolving them. Several anecdotes illustrate challenging situations due to Australia's geography, universal healthcare system, and the genetic counseling profession's evolution in that country. The results generally validate domains identified for U.S. genetic counselors. They further suggest that certain ethical issues may manifest in ways unique to a given country, and therefore they must be addressed in a culturally-appropriate manner.
AB - Ethical issues are an inevitable part of genetic counseling practice. Prior research identified 16 domains of ethical and professional challenges encountered by practitioners in the United States. In order to further validate these domains, the present study surveyed Australian genetic counselors. Sixty-three respondents rated the frequency with which they encountered each domain, and 39 individuals also provided personal anecdotes detailing their most challenging ethical and professional dilemmas. Every domain reportedly was experienced by the Australian sample. However, there were some differences between Australian respondents and U.S. genetic counselors in frequencies of domain occurrence, and in strategies recommended for resolving them. Several anecdotes illustrate challenging situations due to Australia's geography, universal healthcare system, and the genetic counseling profession's evolution in that country. The results generally validate domains identified for U.S. genetic counselors. They further suggest that certain ethical issues may manifest in ways unique to a given country, and therefore they must be addressed in a culturally-appropriate manner.
KW - Ethical and professional dilemmas
KW - Ethical decision-making
KW - Genetic counseling in Australia and the United States
KW - Genetic counselor ethical strategies
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U2 - 10.1007/s10897-009-9229-9
DO - 10.1007/s10897-009-9229-9
M3 - Article
C2 - 19452265
AN - SCOPUS:68149122021
SN - 1059-7700
VL - 18
SP - 379
EP - 394
JO - Journal of Genetic Counseling
JF - Journal of Genetic Counseling
IS - 4
ER -