Bibliographical noteFunding Information:
This workshop was made possible, thanks to the financial support of the European Neuromuscular Centre (ENMC) and ENMC main sponsors: Association Fran?aise contre les Myopathies (France), Deutsche Gesellschaft f?r Muskelkranke (Germany), Telethon Foundation (Italy), Muscular Dystrophy Campaign (UK), Muskelsvindfonden (Denmark), Prinses Beatrix Spierfonds (Netherlands), Schweizerische Stiftung f?r die Erforschung der Muskelkrankheiten (Switzerland), Telethon Foundation (Italy), Spierziekten Nederland (The Netherlands), and Associated member: Finnish Neuromuscular Association (Finland). Also, we would like to thank CSL Behring and Grifols SA for additional financial support to cover travel expenses of participants from non-ENMC countries.
Ongoing funding is one of the crucial requirements for this project. Funding will be needed for the development and management of the central INCbase database, management of databases and biobanks of current registries, monitoring if required by local legislation and specific projects to analyse data or biomaterials. The task force will submit grant proposals for the central database to pharmaceutical companies and the GBS/CIDP Foundation. The registry coordinators are responsible for funding of currently running registries. Local sites will be assisted in the future by the SC to obtain funding for biobanks and specific research questions.