TY - JOUR
T1 - 231st ENMC International Workshop:: International Standard for CIDP Registry and Biobank, Naarden, The Netherlands, 12–14 May 2017
AU - participants of the 231st ENMC workshop
AU - Eftimov, Filip
AU - Bunschoten, Carina
AU - Rajabally, Yusuf
AU - Querol, Luis
AU - Adrichem, Max E.
AU - Allen, Jeffrey
AU - Antoine, Jean Cristophe
AU - Basta, Ivana
AU - Van den Bergh, Peter
AU - Blomkwist-Markens, Patricia
AU - Breukel, Alexandra
AU - Bunschoten, Carina
AU - Cornblath, David
AU - Doppler, Kathrin
AU - Eftimov, Filip
AU - Goedee, Stephan
AU - Hadden, Robert
AU - Harbo, Thomas
AU - Hiew, Fu Liong
AU - Jacobs, Bart C.
AU - Lehmann, Helmar
AU - Lunn, Michael P.
AU - Merkies, Ingemar S.J.
AU - Nobile-Orazio, Eduardo
AU - Querol, Luis
AU - Rajabally, Yusuf
AU - Reddel, Stephen
AU - Vallat, Jean Michel
AU - Uncini, Antonino
N1 - Funding Information:
Ongoing funding is one of the crucial requirements for this project. Funding will be needed for the development and management of the central INCbase database, management of databases and biobanks of current registries, monitoring if required by local legislation and specific projects to analyse data or biomaterials. The task force will submit grant proposals for the central database to pharmaceutical companies and the GBS/CIDP Foundation. The registry coordinators are responsible for funding of currently running registries. Local sites will be assisted in the future by the SC to obtain funding for biobanks and specific research questions.
PY - 2018/2
Y1 - 2018/2
UR - http://www.scopus.com/inward/record.url?scp=85039779398&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=85039779398&partnerID=8YFLogxK
U2 - 10.1016/j.nmd.2017.10.009
DO - 10.1016/j.nmd.2017.10.009
M3 - Article
C2 - 29305135
AN - SCOPUS:85039779398
SN - 0960-8966
VL - 28
SP - 178
EP - 184
JO - Neuromuscular Disorders
JF - Neuromuscular Disorders
IS - 2
ER -